Lumifer comments on A Medical Mystery: Thyroid Hormones, Chronic Fatigue and Fibromyalgia - Less Wrong

23 Post author: johnlawrenceaspden 14 February 2016 01:14PM

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Comment author: Lumifer 10 March 2016 03:53:20PM *  2 points [-]

has comprehensively debunked the medical theory and treatment...

The track record of people who claim things like that is not good.

Go one meta level up and consider the likelihood of all the endocrinologists being knaves or fools...

'Could the patients be right?'. About their own symptoms.

A recent Yvain post might be relevant.

idiots in white coats claim the glory of physics despite not being able to reason their way out of paper bags

Happens all the time X-) but still does not imply that "comprehensive debunkings" are correct. Reverse stupidity, y'know...

Comment author: johnlawrenceaspden 10 March 2016 04:36:36PM 0 points [-]

Absolutely agree, again. I must be wrong, for reasons I cannot see.

But the fact that this idea is obvious (to a child!), widely believed, often believed by empirically-minded doctors, causes striking-offs of those doctors brave enough to act on the belief and yet has no obvious refutation in the literature or in any public place I can find, is itself a scandal.

Can you imagine how easy it would be for a man to find the reason that his clever method of squaring the circle must be wrong? Or that his perpetual motion machine doesn't work? Or that he can't communicate faster than light?

I might not be able to understand the refutation, if it exists. I accept that. I don't have the knowledge. But it should be in a public place, and someone should be pointing me at it while calling me a moron.

And God help us all if I'm actually right.

Comment author: Lumifer 10 March 2016 04:53:14PM 0 points [-]

But it should be in a public place, and someone should be pointing me at it while calling me a moron.

You're at LW which is not inhabited by a large number of doctors or biomedical PhDs :-) I don't know the right places for you to go to, but watering holes for medical geeks must exist. LW is not it, though.

Or you can start digging through PubMed X-)

Comment author: johnlawrenceaspden 10 March 2016 05:38:00PM 0 points [-]

Or you can start digging through PubMed X-)

I've been digging through it for the last three months. And I can't find what I'm looking for. That's why I'm asking for help. The author of Tired Thyroid has obviously been digging through it for years.

Comment author: Lumifer 10 March 2016 05:42:06PM 0 points [-]

And I can't find what I'm looking for.

What are you looking for?

Comment author: johnlawrenceaspden 11 March 2016 06:13:34PM *  0 points [-]

Evidence against my idea! Firstly I was looking for reasons to believe that the replacement of clinical diagnosis by the TSH test in the early 70s was done carefully.

Now I'm looking for any attempt that has ever been made to refute the claims of Broda Barnes, or to investigate why there should be 'insulin resistance', but not resistance to other hormones.

As far as I can tell, there aren't any. They've just assumed their stupid TSH test to be gospel, despite massive patient complaints, and ignored a seventy year old tradition of treatment that appears to work really well, and that seems to be working really well on me.

Comment author: johnlawrenceaspden 10 March 2016 04:50:17PM *  0 points [-]

Read Yvain's post. As always brilliant.

I can see the reason for Attitude 2, but I think you're only allowed to use it if your arrogant airy dismissal then results in a drill-down to find the real problem, which real problem then leads to an intervention that actually helps and clears up the original difficulty.

One reason I think I'm a loony is that Yvain liked my first post, and sent me some clever questions which prompted the metamorphosis into the second post.

So I sent him the second post wondering what he thought, and now he's stopped talking to me. Good evidence that I'm unhinged.

My attorney thinks I'm sane (and he should know). And he thinks I'm wrong (and he should know). But he can't tell me why. (and he should be able to).