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JoshuaZ comments on Open Thread, December 2-8, 2013 - Less Wrong Discussion

2 Post author: ChrisHallquist 03 December 2013 05:10AM

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Comment author: JoshuaZ 04 December 2013 04:33:07AM *  15 points [-]

Petition to the FDA not to ban home genomic kits like 23andMe. I recommend people here interested in personalized medicine, transhumanism, or have any libertarian bent consider reading and signing.

I added my own comment

I am an Ashkenazi Jew. We are a population with many well-documented diseases tied to recessive alleles. It is unfair to force a minority population to have to pay massive sums of money so that we have to find out our own genetic situation. This applies to genes such as BRCA1, which causes cancer, or the alleles which causeTay Sachs and autonomic neuropathy type III, all cases where the documentation is strong. Ashkenazic Jews are not the only group in this situation, and there are also bad alleles which are not more common with specific ethnic or racial groups. The individuals with those genes deserve the same benefits.

The FDA's move is a step in the wrong direction which interferes with the fundamental right to know about one's own body.

The last line I added in part to aim at the current left-wing attitudes about personal bodily integrity. I stole the less well known disease from Yvain's excellent letter here, where I got to find about yet one more fun disease potentially in my gene pool. I strongly recommend people read Yvain's letter.