So, I read a post a little while ago saying that asking the community for advice on personal problems was okay, and no one seemed to disagree strongly with this. Therefore, I'll just ask for some advice, and hope that I'm not accidentally going past some line. If I do, I apologise
I have had migraines for quite a while now. They started when I was a child, but were infrequent in those days. They got progressively worse as time went on, and things started to get quite bad when I was about 12. A few years down the line, I would have headaches for months at a time, with migraines popping up for a few days a month. It got worse from there. Now, I have had migraine-like symptoms for 10 months now. I say migraine-like because part of the definition of a migraine is that it lasts from about 3 hours to a few days. According to a neurologist I recently went to, I have transformative migraines, or wording similar to that. So I have all the symptoms of migraines, except they last for inordinate amounts of time. I've had an MRI, and it showed nothing wrong with my brain. According to the World Health Organisation, this is more disabling than blindness, and as bad as acute psychosis: http://www.migrainetrust.org/chronic-migraine You can see why its rather important to me that I get rid of/deal with this.
Now, I've tried quite a lot of things over the years, especially in the last two or so. NSAIDs do very little, and thing like migraleve (paracetamol with codeine) are a little better. Sumatriptan provides some relief, but it doesn't get rid of the migraine. At best it will knock me down to a weak migraine. I've tried taking propanalol (160mg) for half a year, and it does little to help. I was prescribd Amitiptyline (10mg) a week ago, but it hasn't had much effect. I was told to increase by 10mg it every two weeks until I hit 30mg. I've also tried cutting things out like chocolates, and dairy for a month. It didn't have any effect. I also don't have any caffeine. So this eliminates some common causes of migraines. My migraines sometimes respond to heat/cold applied to my head, but this is only some of the time, due to my migraines shifting in nature. Further, it only takes the edge of them. I've also tried taking magnesium supplements, but they had a negative effect on me i.e. strange dreams and insomnia. That just made my problems worse. Also, I've ruled out medication overuse.
So, does anyone have any recommendations? There should be a few people who have had experience with this level of migraines, and I expect they might be able to provide some advice. I'm not too optimistic, but I really need something that works.
That sounds beyond terrible. I really wish I could be of more help. I know exactly how awful it is to have a migraine for one hour, but I cannot fathom what it must be like to live with it perpetually.
Well, here is some general Less Wrong-style advice which I can try to offer. The first thing is that since you have been coping with this for so long, maybe you don't have a clear feeling for how much better life would be without this problem. If these migraines are as bad for you as I imagine they are, then I would recommend that you make curing yourself almost your first priority in life, as an instrumental goal for anything else that you care about.
I agree that it is worse than blindness. If I went blind, I would learn to cope and not invest all of my energies into restoring my vision. But if I were you, I would classify curing your migraines as a problem deserving an extraordinary effort as if your life itself were at stake ( http://lesswrong.com/lw/uo/make_an_extraordinary_effort/ ). That means going beyond the easy and obvious solutions that you have already tried (such as medication) and doing something out of the ordinary to succeed.
Treat this as mere speculation, since I'm not up-to-date on the migraine literature anymore... but an example of out-of-the-ordinary solutions, you could try renting a different house for a month, moving to a different city, or even moving to a totally different country for a couple weeks. The thinking being that if there is an environmental trigger, a shotgun approach that changes as many environmental variables at once might solve this. For example, if it turned out you have a sensitivity to something in your house, moving house for a while might work. If it turned out to be air pollution in your city, then moving to a cleaner environment might fix it. Unfortunately, unless the state of migraine knowledge has advanced a lot, I think the space of possible hypotheses is huge. So...
Basically, I'm suggesting that you might want to try something on the scale of a month-long trip to live with Buddhist monks in Nepal, or on a Kibbutz in Israel, or to a fishing village in Newfoundland, or something. Changing at once basically everything about your lifestyle from diet, exercise, environment, sleep schedule, electronic devices, and interpersonal interactions. It's not the kind of solution most people would try, especially since the daily responsibilities of life (work, family, money, etc) always seem to take priority, and nobody has the time to just go and leave for a month. Especially since you have a severe impairment which probably makes all the other things take even more time and effort. But that's the difference between making a desperate effort, and "trying to try" just to satisfy yourself that you've done as much as anyone else would do. If curing your migraines is your top priority in life, as I think it should be right now, then it's worth investing a year of your time.
Anyway, that's the only other thought I have. You should try the easy things first of course (starting with MSG), but before you give up make sure you understand how wide the space of possible solutions might be, and how many different lines of attack might exist that haven't even been thought of yet.
Well, I've actually grown a bit as well. I can successfully put most of the pain to one side whilst I'm doing something, but my general cognition goes down quite a lot. There is little I can do about that besides resting, which is when the migraine pain train comes full speed.
The major lifestyle changes sound nice, but they are beyond my current capabilities. I am not yet even 20, and I have some important exams in about a month and a half. That is what I am most worried about. I can still do well, but not nearly as well as I could do if I didn't have thi... (read more)